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THIS is ALD

(one story at a time)

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THIS is ALD # 5 — Mason

GalleryFebruary 10, 2018 smilesandducttapeLeave a comment

Originally posted on smiles and duct tape:
We are busy celebrating Anna’s big news and preparing for the HoliDAZE, but wanted to take some time to introduce you to another ALD champion, Mason. I met Mason’s mother, Tina, this fall and she agreed to share a bit of their ALD story. Tina is a remarkable…

THIS is ALD #4 – Jon

GalleryFebruary 9, 2018 smilesandducttapeLeave a comment

Originally posted on smiles and duct tape:
“When you hear hoofbeats, think of horses not zebras” It’s a quote by a professor at the University of Maryland School of Medicine in the 1940s. A reminder to his students that, when searching for a diagnosis, not to think of the obscure until you can rule out…

THIS is ALD #3 – Dalton

GalleryFebruary 8, 2018 smilesandducttapeLeave a comment

Originally posted on smiles and duct tape:
The response to THIS is ALD has been remarkable (If you missed post, check it out). I’ve spent much of the last week corresponding with people in the ALD community — hearing stories and sharing our own. It’s been emotional, but it does have me thinking that I’m…

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What is THIS is ALD?

Adrenoleukodystrophy (ALD) doesn’t always follow the same path. THIS is ALD shares our disease one story at a time.

Recent Posts

  • THIS is ALD too – no more “c” word November 12, 2019
  • An Opportunity for Caregivers October 23, 2019
  • THIS is ALD #26 – Hutch — smiles and duct tape August 27, 2019
  • THIS is ALD #25 — Grady — smiles and duct tape January 30, 2019
  • THIS is LEUKODYSTROPHY #24 — Ethan January 26, 2019
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