THIS is ALD #19 — Alan, Cesar and Maximiliano

smiles and duct tape

THIS is ALD.jpgMy name is Kim and I’m the oldest of four children. I have 3 brothers. Angel , Cesar, and Alan. My brothers were all born healthy. Until 2016 nobody knew this horrible disease ran in the family.

December, 2015 my mom started noticing changes in my brother Alan – he was eight-years-old. He was having hearing problems and a hard time at school. My mother took him to a hearing specialist and they didn’t think anything was wrong. By May, 2016 things got worse. Alan started complaining of a terrible headache and was taken to a local hospital. They transferred him to a bigger facility, but the doctors had trouble figuring out what was going on. It wasn’t until they did an MRI that they discovered Alan had ALD.

28417773_1620588834657462_629786931_o Alan and Cesar before ALD

My parents are Mexican and speak little English. They understood the diagnosis, but had many questions…

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